This will touch on things that many people might be uncomfortable with but I think employers and employees need to understand. I am going to tell my story and how my life is going now and where it will go in the future – or at least the most likely and least likely outcomes of my story.
First off, you need to know me. I am disabled – most recently in an obvious, people can see I am disabled way and then the ‘silent’ disability that most people didn’t see or understand past me being ‘weird’.
First the silent disability – I am autistic. I am one of the ‘lucky’ ones that because my special interests made me EXTREMELY useful to the companies I worked for, I often had assistance to ‘mask’ beyond the normal masking that autistic folk have to do. I had ‘co-conspirators’ who literally ran interference for me when people would be thinking I was weird – managers who because they valued my computer skills, would help me to deal with things like not dressing as professionally as other companies would expect or giving me an office to hide in and do the things I needed to when everyone else was in a open workspace – even back when such things weren’t the norm.
However, back then I wasn’t diagnosed and wasn’t considered disabled even though I was. The problem with that is for a lot of people, their special interests aren’t ‘marketable’ the way mine are and their autism, ADHD and other ‘silent’ disabilities make it almost impossible to work. In fact, my eldest daughter, who is both autistic and ADHD, gave me statistics on how many folk like her COMMIT SUICIDE because they simply can not work in the normal workplace because they are constantly exhausted not from the work, but being forced to mask and act like they are like normal people. And normal people don’t see this. And then they attack DEI initiatives that help people like us find work and be protected. These are things that right wing politicians and people don’t understand – it’s not just sexual orientation and race issues they are attacking when they attack DEI. They are also attacking disabled people.
Now, I was only classified as disabled after two strokes and cancer. I don’t have a partner (my common-law husband and I split because he was a) cheating and b) wasn’t working or even trying to work – I was the sole breadwinner and he couldn’t even be bothered to get a job or help take care of his daughter – my younger daughter who has ADHD). So the RRSP that I had accumulated was used up surviving before my disability (CPP-D and AISH) was approved.
My youngest wouldn’t have had a chance to even get an post-secondary education if I hadn’t fought back to return to work. Even at the maximum that I was getting (~ 1680 a month) which because AISH was not indexed to inflation was a flat income even though my CPP-D was indexed to inflation – it meant that the only people that was benefiting to the indexation was the Alberta government – they got to send me less money – the AISH portion of that ~ 1680 was about 380 dollars. And again – note – CPP-D is literally MY PENSION that MY CPP contributions from WORKING created – it is NOT a ‘handout’.
When I applied for my CPP-D and got my Canadian Disability Tax Credit, it didn’t help me directly. I wasn’t working at that time. That was also when I found out that I was too old to get the additional money that the government would add to an RDSP. The cut off for that was 50 and you can only contribute to an RDSP until the disabled person is 60. The lady I spoke to at the time, apologized to me.
So within a year of being on CPP-D and AISH, I was bored of not working, I was tired of not being able to afford to live comfortably and I was scared of what would happen to my youngest if she couldn’t get a post-secondary education because she was forced by our circumstance to continue working at a dead end job (Walmart). So I, without asking my social worker, sought out what agencies were available to help me find work. The one that helped me was EmployAbilities. (https://employabilities.ab.ca/). They were thrilled to help me – again I was ‘lucky’. I had a tonne of marketable skills. In my work history, I had years of experience.
That didn’t make it easy.
I went to a LOT of interviews and since my strokes had taken my ability to speak easily – they weren’t interested. Permanent jobs are also not easy to get in Alberta. Albertan employers like to hire contractors. I had done contracting prior to my strokes, and I believe that the stress contracting caused me, contributed to my strokes. So you understand, there are different types of stress – I can handle normal work stress. At TELUS, some types of stress was normal. We had a saying “Everything is always burning and if you think it isn’t burning, smell the air, I bet there’s smoke.” That stress – no problem. Second nature. Stress from contracting – just no. The difference is – am I going to have a job next month? Are they going to cancel the contract? The contract is about to end – do I have to go find another job or will it get renewed? This is the stress that caused my strokes. Again – single mother AND we were taking care of my elderly mother at the time who had serious health issue. I could not afford to not be working. So finding a permanent job in a province OBSESSED with contracting, was no small feat.
The first company that hired me – didn’t work out. The issues were around my disability. I am not going to call them out – but it wasn’t a good place.
I ended up taking a contract. We needed the money. As stressful as it was, the manager I was working for (not the contracting company) was a good lady who as my managers in the past, acknowledged my skills and what I could offer her office. The bad part – it was with the Alberta government and they LIMIT the number of months you can work for them on one contract – and they were only doing three month contracts – so I knew that while I was LIKELY to get a second contract, the government rules meant there wouldn’t be a third one.
Now enters Auvik, my current employer and my mentor in technical writing, who has sadly passed away, Darrel. I had met Darrel contracting with Enbridge prior to my strokes. I had helped him learn about being a business analyst so that he could take on other roles at Enbridge and other places, and he stepped up after my strokes to help me find more work in technical writing; his forte. I’d done some interviews and they hadn’t worked out. He didn’t like how I was being pushed into BA work again. So he was my cheerleader.
Then I got the interview with Auvik (http://www.auvik.com). They loved my IT business analyst, programmer and helpdesk background. They hired me in a week. I love it there. I’m still there and don’t plan on leaving.
So the future looks good right?
Well, yes and no. As long as I Auvik needs me, I am there. I have talked to my director and my job is pretty secure. I always think though – will they need me until I am 70? The older I get, with my health issues, the harder it will be for me to find another job. I just passed my 53rd birthday. So that means I have to maintain a job for another 17 years.
If I do manage to do that, I’ll have about 130k in my RRSP which as long as my CPP (which I am contributing to again) doesn’t get transferred into the ill-thought out Alberta Pension Plan by the Alberta UCP, I will be ok financially. Not incredibly wealthy. Just Ok. That is my ‘best case scenario’.
If things go wrong. I loose my job. Can’t find another job. Well, it depends on when that was to happen.
If the Alberta government was to put my CPP in their APP, knowing they will NOT put forth any protections on it to stop them from using it to prop up their pet projects and would basically decimate it. That is my ‘worst case scenario’.
In that case, if I was unable to work and my CPP was lost to political machinations – my backup plan is to sign my RRSP into another RRSP for my youngest daughter and seek MAID (Medical Assistance In Dying).
And that’s the truly sad thing that I don’t think these politicians think about and in my darker moments I think they don’t even care about it. I am not someone who expects someone else to pay my bills but there seems to be a real lack of caring in both the political class and a lot of normal people these days too.
And the sad thing is that a lot of these normal people would yell that I just don’t want to work (which makes no sense given my story) or that I was wrong but so far I don’t see a lot of caring in the world.